Which comes first, the brain or the gut? It’s a valuable and confusing question in my health journey these days. I wish I knew the answer.
I made another trip to Mayo last week to meet with Dr. Cascino to discuss my epilepsy journey. We agreed that we’re not happy with the results that I’m getting from my medication and that, with my history of negative reactions to medications, it’s time to look at other options.
So, while I’ve been spending the last few weeks trying to detox to clean up my gut and recover from my latest recurrence of DRESS Syndrome a few months back, I now find myself getting ready to go back to Mayo for more tests and the possibility of a whole new plan to address my epilepsy, maybe including brain surgery.
I don’t quite know what to do with my diet right now. I’ve mostly been sticking to it. I figure that it’s a good thing to give my gut and, by extension, my whole body all the support that I can. But on the flip side I find myself thinking, why not wait until I know what’s going on with my plan of care? I think for the moment I am just going from moment to moment and maybe it’s giving me a chance to learn.
Today, I had a bagel with cream cheese. Shortly after, I noticed the bloating and heaviness in my gut. I don’t know if it was the dairy or the grain or maybe some other ingredient, but I strongly suspect that my body wasn’t impressed by the bagel though I’ll admit it tasted really good. Eating a little something like that on occasion right now probably isn’t all bad if I’m writing about it and learning from it, discovering what I can and can’t eat and feel good. The trick is to maintain a diet that is vast majority fruits and vegetables.
I did notice today, before my bagel discretion, that I am finally starting to regain my energy again. I’m walking more, starting to do yoga a bit again, practicing my guitar a bit more, and napping a little less. I’m slowly coming back to normal. I am hopeful that I can overcome DRESS and that with the help and guidance of my Mayo team I can become seizure free too. It’s exciting to imagine what that might be like to regain even just a bit of my former self. I’ll never be a decade younger, but there is some hope that my mind will work a bit better again. I guess we’ll see. Life remains an adventure.