Category: disability

Thoughts on Making Schools Safe

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While sitting in the laundromat earlier today waiting for my clothes to dry, I was paging through the news on my phone. I saw an article from WPR that said Wisconsin schools are calling the police on students at nearly twice the national rate. Kids with disabilities, Latinx, Black, and Native students are the victims of most of the calls with Native kids at the top of the list closely followed by Blacks. The article made me ask again what it is that I love so much about my home state, maybe it’s my love of wanting to make things better.

While calling the cops on these kids might simply mean a referral for a child in crisis or a warning for some teenage action like yelling at teacher and aren’t by any means all arrests, it’s still hugely problematic that kids with disabilities and BIPOC youth are being referred to law enforcement at twice the rate as the overall student population and Native kids are three times as likely to be referred as white kids. It’s 2021 and we’re still operating as if it’s against the law in Wisconsin to have brown skin or to have a disability! Come on folks we can do better than this!

While I don’t pretend to have all the answers. I do think there are a few things that put together are worth considering.

  1. Take cops out of our schools. I’m not going to say that police are bad. I am saying that they have a role and that role is to uphold the law. By having them in schools that presumes that the law is not being upheld or is in danger of not being upheld. It tells kids that our expectation is that they will behave as criminals and that their space isn’t safe. Kids getting the message every day that they are criminals in an unsafe environment are more likely to act as criminals in an unsafe space.
  2. Support the support systems. A few generations ago black and brown children were stolen from their families to be sold in slavery or handed over to the boarding schools. Still, family systems remained and adjusted to care for these children. These family systems are under great stress as the dominant white culture continues to steal their children away through foster care, prison, drugs, and other tools. It’s important to recognize that families don’t look the same, nor should they, across all cultural groups. We need to see these systems and simply stop threatening them and stealing their children.
  3. Care for the educators. This is a simple one that we’ve all heard many times. Our teachers and school staff need the physical resources, time, and classroom support to do their jobs. They also need to be compensated for the work that they do. That’s it.
  4. Honor the bodies and spirits of our children. We are all impacted by what we take in. Our kids today are taking in a lot of junk. They’re fed junk on their plates in the form of processed foods filled with sugars and chemicals. They’re fed junk on the screens of their phones and computers all day long. They fed junk in stories about themselves as they’re forced to digest the history of the powerful that doesn’t represent them. All junk. How can we expect anything other than anger and frustration? Feed them goodness. Feed them good food. Feed them the stories of their own peoples. Tell them their histories of strength and courage. Feed them beauty. Give them the opportunity to run and play and explore the world or just the backyard. Feed their souls. Let them stretch their creative selves and find other ways of being beyond angry.
  5. Look at ourselves. These kids weren’t born angry or trouble makers. They were born cute and cuddly, adorable and sweet. We made them who they are. It is us who need to deal with our stuff. It is us who need to look at ourselves each day and ask ourselves how our actions are impacting the world. It is us who need to act.

Remembering What’s Important

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Image result for St. Coletta School

I remember, as a little girl, watching “Facts of Life” on television.  I always wanted to be one of those really lucky, smart kids who got to go to a boarding school.  It seemed so special, almost magical to have that kind of freedom.  It’s funny looking back at it now.  My older brother actually went to a boarding school, St. Lawrence Seminary,  and I visited him quite often as a young child.  I saw his boarding school first hand often.

I also saw St. Coletta’s.  I was thinking of it today, remembering how I loved to visit St. Coletta’s, how I was really kind of jealous of the people that I met there, how I wanted to live there in that wonderland.  I had no idea, as a young child, that the people who I met at St. Coletta’s had severe developmental disabilities.  I just thought they were happy and having fun.  Maybe they were.

St. Coletta’s is a special place in my memory because of a special woman who left the world this morning.  Sr. Phillip was my aunt.  She did laundry and care giving for residents of the school.

There are many of us in the world who hold that title “I grew up Catholic.”  It seems a lot of us hold an anger about that experience especially about the nuns and priests in our lives.  I don’t.  I don’t hold the same beliefs I did when I was younger, but I look back at some of the believers who’ve taught and guided me and I am inspired.

Sr. Phillip was one of those.  I remember her hands, scarred from years of work.  Her smile and twinkling eyes, her walk that really was just like a penguin.  Her hips and legs had to have caused her great pain.  For the last several years she depended on an oxygen tank.  But, she never complained.  She was truly happy.  So often we’re running from here to there acquiring stuff, seeking accomplishments, trying so hard to be greater than we are and falling short, disappointing ourselves and just being lost.

Sr. Phillip just smiled and laughed and enjoyed the people she was with.  She lived over 90 years.  I knew her half that time.  I don’t remember ever seeing her angry for more than a moment.  I think back now and know that she spent decades of her life working and living with individuals facing huge challenges in their lives.  She lived with a vow of poverty.  She also lived within a loving community, with a faith that meant a great deal to her, as a part of a family that she loved.  She had it all.

I thank her for reminding me what’s important.

Challenges and Gifts

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My father will turn 90 in just a few days.  Family is gathering for the party tomorrow.  I’ll be 500 miles away.

That wasn’t the plan.  The plan was that I’d drive home yesterday, spend a little time with friends along the way, then head for a weekend with family.  My body, well actually my brain, changed the plan.  I have epilepsy.  I was diagnosed in 2013.  My seizures have been well under control, but one showed up a few days ago and I had to set down the car keys for the next few months.  And, I had to take a few days to just rest and recover.

The good news is that it encouraged me to pick up the laptop again.

I don’t know why I have epilepsy.  I come from a large family and I am the only one with this challenge/gift.  I can hypothesize a list of possibilities, and I have many times. But, the reality is that it’s here and I get to live with it.

Why write about it?  Well, because it is a gift and gifts are good to share.  What? Epilepsy is a gift? No way!

I will admit it’s not a gift I would have chosen and if I had the receipt I would most definitely return it, but it is a gift.  Here are just few reasons why I consider my epilepsy a gift in my life.  I wonder what unexpected and perhaps unwanted gifts life has given you?

  1. It’s helped me look at the temporary nature of life to better understand that there was a time without me and there will be another time without me.  That’s ok. Now is my time to be alive.
  2. It got me to take pause to take care of myself.  I’m now a whole lot more conscious of when I need to just relax.  I’ve totally changed my diet, lost a lot of weight, and feel much better and happier.
  3. It’s helped me empathize with the experience of others.  Seizures scare people.  They also sometimes limit some of the things that I am able to do.  Epilepsy is covered by the Americans with Disabilities Act.  So, I am told, by the law, that I now have a disability.  Some days I agree.  Some days I don’t.  But, I do know that I have a better understanding of how both my brain and societal rules create limits.
  4. I have found great support.  I am a lucky one.  I have a strong family and friends that don’t run when they get scared.  I’ve also been able to find some excellent online support groups that have added to the group of people that I have that understand.  How amazing is it when people stay with us through the our rough spots?
  5. It’s continued to inspire my work to encourage healthy living both as individuals and as community.  My experience simply reminds me that we need to take care of ourselves individually and as a community if we’re to survive and thrive.

What challenge/gifts inspire you and carry you forward?

Musings After Fergusen

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November 25th, 2014
We’ve all been listening to the stories about Ferguson. There are many conversations out there about what happened, what’s happening now, how we’ve gotten to this place, and why.  In my owner corner of the world I’m fairly insulated personally from the protests directly given that I now live in a rural area of northern Minnesota, but not from the realities of racism or from the conversation.  And, my heart still travels with all my friends who hit the streets in cities around the country with the message; Black lives matter.

I was looking at Facebook today, skimming messages, seeing a lot of sadness from my politically liberal, progressive, and radical friends about the decision in the case and more broadly around how it has been considered a reflection of how Blacks are demonized in the U.S. Then I saw a message that troubled me more.  It was from someone who I care about deeply and who generally doesn’t share my politically ideologies.  It was a picture of an African American police office (I think it was an actor, but I couldn’t remember the show) with the message “Instead of saying ‘fuck the police’ How about you stop breaking the fucking law.”

It troubled me more because I know this woman to be a loving mom with beautiful, smart kids, a caring person who is very involved in her community and church.  She’s someone who is thoughtful, politically engaged, and wants the best for the little ones that she is raising as well as herself and her husband, friends, and family.   Politically a conservative yes, but not so different from me or anyone else I know in her underlying human needs and wants, and someone who I love as family.

I had to decide what to do.  Should I ignore this post that bugged me and keep tension out of the family or do my job as an anti-racist activist and say something.  There was no choice there never is.  I made a comment.  I started it with letting her know that I love and respect her then went into just acknowledging that my experience and the first hand accounts I’ve heard in my years of work tell me that the systems (police, schools, healthcare, etc) treat People of Color whether they be African American, Latino, Native American, or any other group differently than they treat White folks and that there are no “bad guys” unless society pushes people into that behavior.  I opted not to get into how behaviors are looked at differently depending on who you are.  It was just a brief facebook post and I thought that would get too confusing for a first naming.  I did, however, suggest reading Howard Zinn’s  People’s History of the United States.  I don’t know, maybe she will.  She is a person who likes to learn and think.

As for me,  I continue to think about what brought me to this place.

Thinking about the stereotypes associated too often with African Americans; criminals, uneducated, low income, addicts, unwed moms, etc. reminded me of when my eyes were first being pried open as a student at UW-Stevens Point.  I think it was during the time that I was SOURCE director and working to ensure that the Black Student Union get a fair trial with the Student Government Association regarding some small issues with a member of the BSU who had been accused of taking some money at an event.  I understood that race was a huge factor in this case and that it would be difficult for the all Black group to get a fair hearing from nearly all white government.  I went to several mentors for advice.  It was somewhere in here that I learned about the struggles that Dr. Andrea Turner had finding housing when she’d first moved to town in the 1990’s.  The Affirmative Action Director for the University was having to deal with racist landlords!  What the heck!  She left Stevens Point after only a few years.

Another Point story for me was a diorama in Andy Gokee’s office.  Andy works in the Native American Center there.  The diorama was one he made with his daughter when she was in elementary school.  Her teacher was teaching the kids something about Native Americans and was having the kids make Indian teepees.  The Gokee family has a long and proud history in what is now Wisconsin and their tribe, the Anishanabe didn’t live in teepees.  Andy took his anger and funneled it into teaching and made a beautiful piece of work with his daughter that shows more accurately how her ancestors lived.

From there I go to the road,  I keep coming back to that Protect the Earth Walk from Red Cliff to Madison.  We walked to draw attention to the seventh generation amendment, the environment, social justice, and to ask people what they wanted for the seventh generation.  I still see it.  Walking down the road, Frank, Walt, and I and there’s an older man, a white man across the road looking at us.  We cross to go talk with him.  Frank who is white and middle aged starts up the conversation.  Walt who is unmistakably Native is standing next to him and I’m a step or two off to the side.  Frank explains what we’re doing and asks him his thoughts.  The older man responds as if Walt and I aren’t even there with a tirade about those “goddamn Indians and those goddamn Indian casinos.”  I realize he has the ability to choose not to see us.

There it is.  There’s privilege.  Those of us with privilege get to decide what to see, who to see, what to do with what we see.  Those without privilege had better see everything or they will be beaten and killed by whatever they miss in that one moment that they miss it.

I was hoping that I would come out of this free writing exercise with some great insight on moving forward.  I’m not sure that I have.  I only know that the toughest folks to confront are the ones you love and those are the ones you must confront. Do so lovingly.  And, that a whole lot of stuff has brought me here,  I am honored to have been given the gifts of these experiences though many have made me sad.  I am and continue to be amazed by the strength of those I have grown to know.

Keep on keeping on.

The Community Table

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August 29th, 2013

I get to work often with groups who want to bring others to the table, wherever that table might be and whatever the people around that table might be doing. Usually the folks they want at the table are different from them in some notable way. They’re often younger. Maybe they have a smaller income. Many times the people with the table have pale skin and the people they’d like at the table have some shade of brown skin.

Increasingly, I’m challenged by that idea of bringing people to the table. I see a couple problems with it. First, it presumes that the people being invited don’t already have their own table that is just as good that you’ve just never seen. Secondly, it keeps the host in the host role. There’s no marriage of equals here. One person/group owns the table. The other is a guest.

We live in a world filled with unhealthy power dynamics around class, race and ethnicity, age, gender, and the list goes on. If we want our organizations and our organizing to not be a reflection of the sickness of the world, we have to do something different.

Step away from the table. Meet the people that you want to work with on shared turf. What are your shared needs and concerns? Know that you may be turned away for a myriad of reasons. Some of those reasons will have to do with your personal actions and some with all the stories of histories of oppression. Show respect. Show a willingness to learn. Show a willingness to fall and get back up again. Know that it will take a long time, maybe forever to build a trust.

Get a new table, one that isn’t yours or theirs, but instead that you fashioned together out of shared dreams. Know that this table will look different than your old one. Maybe it will be stronger and maybe it will be a little off balance. Who knows? It will be larger and have many carvings of great stories hard and beautiful.

How do you step away from your table? Here’s just a couple quick pointers that I’ve found helpful over the years:
1. Diversity of whatever sort isn’t a side issue. It is THE ISSUE. Being welcoming, supportive, and representative of all people that you want to be together at the table has to be central to everything you do.
2. Look at whatever you are working on from many angles. Why might others care about this same thing? Why do you care about it? What do you share with others?
3. Keep looking at yourself and your own actions. We are all products of history. We all need to hold ourselves accountable to act in ways the future can be proud of
4. We are all learners, teachers, and leaders. Allow yourself to be each of these with everyone.
5. Be there. When you are called to be supportive to those you want to work with and who are struggling in whatever way do so in whatever way you are able.

That’s a short clip, no where near the whole story. But, maybe there’s something there to consider. Mull it over and share. I’d love to hear your thoughts.

Thinking Deep at 4am

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July 18th, 2013

A few weeks ago I had a seizure. It was a night like any other until I went to sleep. I had just gone to bed when my housemate heard unusual noises coming from my room. When I didn’t respond to her calls to me she looked in on me. She found me having what appeared to be what is now known as a generalized tonic-clonic seizure. They are more commonly known as “grand mal.” Because the seizure lasted several minutes and I appeared to be having trouble breathing she called 911.

In Madison we do 911 calls with style. They came with a firetruck and ambulance. I regained consciousness to see half a dozen uniformed men and women surrounding my bed. The really good looking guy was in charge of asking me questions. I did my best to answer those really tough ones like “what day is it?” Who knows what day it is when you’re awoken in the middle of the night? It’s tough to answer questions when you’re struggling to form words and figure out where you are and who these people are.

They decided to take me in to the ER. My housemate, Jennifer, met us there and helped me understand what was happening and was my advocate.

The days following that event were really tough. First, of all dealing with the migraine that came along with the two seizures that I had that night and all the other physical side effects. Secondly, exploring all the fears and new understandings that arose as well.

My family and friends have told me how lucky I was that Jennifer was there. I definitely was lucky. I’d thought for months that I might be having seizures. Now I have proof and can figure out how to address them. On the other hand, however, had she not been there I would have slept through it and just woken with a nasty migraine and nothing to fear.

So what does this have to do with organizing?

Lots I suppose. You can’t deal with the issues until you know what they are and you can’t change them, can’t win until you face the fear. It’s also a reminder to me that I am not permanent. There was a time before me. There will be a time after me. Some day my eyes will close for the last time and there’s a good chance I won’t know it.

How do we continue to do the good work with that knowledge, with a recognition of our miniscule space in the grand realm? Again I have no answers.

I do know that over the years I’ve had hundreds of conversation about burnout, trauma, stress, depression, and hopelessness as a part of what we do. I’ve been a part of many efforts to address such things. Some have helped. Some simply died away themselves.

I know that I struggle with those same things sometimes. I find myself losing my ability to feel the passion that I once felt. I am often left with just sadness and emptiness. I both miss the passion and am thankful to not have that intensity that has worn me out. Still, I look for ways to maintain and build my ability to feel and embrace and love this world and its beings.

We, as activists, organizers, and educators, need to figure out how to not just support others but support each other and ourselves. I find the last the hardest. There is always someone else who needs care, who needs support, who needs strength. They don’t jump in front of me in the line to receive care. I step behind them, push them forward. It’s easier to address another person’s needs than my own.

Tonight, or rather this morning I’m staying awake. I have to. I am going to get my brain scanned in the morning to see why I had those seizures. I have to be in a sleep deprived state. In a little more than an hour I will have been awake for 24 hours straight. Surprisingly I still feel quite awake. In fact, I’m going to take a shower and go for a long walk with the dog when I’m done writing this. It’s been a while since either of us has seen a summer sunrise.

I hope to learn something there that will help me move toward caring more for myself and through that care rebuilding my passion. I ask my fellow activists, organizers, and educators out there, don’t wait for the seizures and brain scans. Show yourself that love and caring that you save for those you defend today and every day. If we are to be in this work for the long haul, we need to be here for the long haul.